By Jill Harrison, Matthew Henderson, Rob Leonard
Fathers of disabled young children can suppose neglected while the focal point of a lot parenting help is aimed toward moms. "Different Dads" is a set of private stories written by way of fathers of youngsters with a incapacity who think about their very own reviews and supply suggestion to different fathers and households at the demanding situations of elevating a toddler with a incapacity. The fathers featured characterize a huge spectrum of studies. participants are drawn from a variety of cultures; a few are unmarried fathers, others are married adoptive fathers. What all of them have in universal are the demanding situations that face them and their households in elevating a toddler with a incapacity. components explored contain the reactions of relations, buddies and associates, how one can care for the enterprises and execs that aid households with a disabled baby and the trouble of being open approximately emotions in a tradition that does not continually count on males to have a delicate or nurturing function. supplying direct and insightful views on being a father of a kid with a incapacity, this e-book should be a invaluable resource of aid and knowledge for households with disabled young ones, and likewise for future health and social care pros who paintings with those households.
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Additional info for Different Dads: Father's Stories of Parenting Disabled Children
We discovered direct payments and, using two close friends and former nursery workers that knew and had worked with Matthew, employed them to have him for a few hours each weekend. It still came back to Helen pushing for it, though, filling in masses of tax and employment forms, and has been far from simple! It was almost like dealing with all the different services right back at the start. Although we had changed as people, the system had not. You still had a fight with most things, and that was even with a certain amount of ‘insider knowledge’ thanks to Helen’s experiences in the medical profession.
It seems people with disabilities are to be further marginalised at the very time when they are becoming more visible. They are either expected to work 40 hours a week for the minimum wage, or to be on a treadmill of endless courses and social activities, with little control over their lives. I think that this is so important to all of us. We should not try to control others’ lives. It was not me who made Paul an academic success, 52 Different Dads just as it wasn’t me that made Jenny have autistic spectrum disorder (ASD).
Through my partner, we also linked up with the French support group; we attended some seminars in France, where leading consultants talked about the condition and patients related their case histories. It was great, because it gave us a format to go on and we were also able to use some of their information. Now we’re nearly eight years down the line and things have settled down enormously. We’ve all got used to living with Ollier disease – and apart from his not being able to run too well, it doesn’t affect my son’s or our day-to-day lives, apart from the odd visit to the consultant.